Wednesday, May 26, 2010

Take a break

Hi there!
It's Wednesday, hump day, and I just wanted to remind you all to take time for yourself today. Pick a shady spot and have a cup of coffee with a friend, read a book or people watch. Take time to de-stress and meditate.

Remember, I'm praying for you and your special person!
Much love and joy,
Karen

Tuesday, May 25, 2010

Assistive Technology - Faucets

Hi everyone!
This is the absolute coolest! If your special someone has trouble telling hot from cold this might be something you're interested in. They only cost about $20 and if they prevent a burn ... how worth it is that? I've included the link to Amazon since its an uber-safe company to order from but there are other companies that sell this faucet.


Chrome faucet with changing colors



Product Features:



• Shiny Chrome Colored


Changes with water temperature


• Red for hot, Blue for cold is helpful for children and seniors especially.


• Comes with 2 universal adapters to fit most USA or American water faucets


• Installs easily, long lasting LED, enclosed battery pack included

http://www.amazon.com/gp/product/B0015PWOK8/ref=oss_product



Good luck and have a great day!
God bless,
Karen

Monday, May 24, 2010

Bless this Nest

This is Lou. He's the family chicken. My grandmother crocheted him and I couldn't part with him so now he's become the family mascot. He's had his picture taken in the dental chair (do chicken have teeth?), on road trips and at various gatherings.

The sign behind him says "Bless this Nest." The question I want to put to you today is "Do you bless YOUR nest?" That can be read about four different ways. I don't really mean are you a blessing to your nest, I mean do you actively ask God to bless your home?

With all the turmoil and angst I think that asking for our homes to be blessed is crucial. "Which of you, if his son asks for bread will give him a stone? ... If you know how to give good gifts to your children, how much more will your Father in heaven give good gifts to those who ask him?" (Paraphrased by me, the full verses are in Matthew 7)

Even though God knows what we need or want, he takes delight in our asking. Think about your own children. When they ask and you're able to answer, or better yet, go beyond and surprise them your heart sings. God is a perfect parent. He will answer your requests. "Ask and it will be given to you; Seek and you will find; Knock and the door will be opened to you."

My nephew Dylan, when he turned six years old, wanted two gifts for his birthday, a cell phone and a credit card. While we all smiled, my brother, like me, believes that children need a cell phone for safety reasons and accommodated the first request. This year Dylan turned nine, and while he didn't get a "real" credit card, he got a Visa gift card. My brother never would have thought to get Dylan a cell phone until he asked and the credit card is more about timing. The point is ... he TRIED to meet his son's wants within reason.

God, on the other hand, doesn't have to be reasonable. He CAN meet our wants and desires. Sometimes we too wait the timing of the answers to our prayers but he always knows what's best for us. It seems hard to believe when someone we love is sick or dying, but if YOU had the power to take that sick child and wrap your arms around him to stop the suffering, how easy would it be for you to put him back on earth to suffer more when you had the power to take him Home where there is no more pain or suffering. Sometimes it's about what's best for one of his other children. As parents of children with disabilities, I think we understand that.

All of this pondering and meditation to say ... Go ahead, be bold, ask God to bless your home. Ask him to bless your family and your special child. Ask him, like a child, for outrageous blessings, love and joy. Ask him to pour out blessings on you that you haven't even thought to ask for.

God bless you and yours,
Much love and joy,
Karen

Sunday, May 23, 2010

A Sunday of Memories

It's Sunday and I'm finally heading back to church! It's been 6 weeks since my hip replacement and I feel secure enough to get up from the pew (no arms to lean on!) without dislocating the new hip. It'll be fun to see my church family, I've missed them and missed going. I live only a block away so I hear the bells and that's always nice, especially when they ring someone Home.

We're also heading to Evergreen Cemetery. It's where my father is buried and we want to make sure everything is set for Memorial Day. It's a beautiful old cemetery with lots of mature trees. We know nearly everyone buried around him so we visit friends too.

We have to leave in about 5 minutes but I just wanted to wish you a blessed Sunday!
Much love and joy,
Karen


Saturday, May 22, 2010

Creative Occupational Therapy

I'm all for traditional therapies but when you need to employ some of those same concepts at home, especially as your child ages, you really need to be a little creative.
One of the best places for Ryan to get OT is at a seafood restaurant. He loves crab and by the time he's done eating it he's had at least 60 minutes of OT without even knowing it! 
He spends time cracking the crab, digging it out and spearing it to dip in butter. He loves every moment and the cost is cheaper than OT in a clinical setting ... about $25 an hour. That's not bad for intensive OT.

We use the same chore based philosophy when we do PT as well. Carrying a basket of laundry becomes heavy activity that we schedule just before we approach an intellectual task. It helps ensure attention and has the added benefit of Ryan being an integral part of the household. Every person needs to feel like their presence is needed.

What other ways do you work on therapies at home?

Have a great weekend,
Praying for you and yours,
Karen

Friday, May 21, 2010

A Time of No Bullying or Ridicule

Do you ever think about what it would have been like to have a child with special needs in the time of the frontier? I think if must have been harder in some ways and yet easier in some ways.

If the only people you saw were family, you'd never know ridicule, bullying or abuse (at least we hope not!) You would be needed for the survival of the family so would feel self worth as you worked along side them. I imagine that those who used wheelchairs would still be snapping green beans, picking berries and helping in other ways.

It wouldn't have been very easy for children who are medically fragile but I wonder about children with autism. With no societal pressures to conform perhaps they could have lived their quiet lives uninterrupted by the 'need' to make eye contact or do what others deem appropriate. The sameness each day of surviving would have fed into their true need for routine and, satisfied, they would have been an immense asset.

Sometimes I want to take my special child and run away to an earlier time, a simpler time. Without my faith I don't know if I'd do as well in this fast paced world. Ryan moves at his own rate and it's not what you'd term Speedy Gonzalez. We'd fit better in a slower time.

What do you think? Would your child have been happier or more "able" in an earlier era?

Take care and God bless you,
Much love and joy,
Karen


Thursday, May 20, 2010

What does MOM say?

Mom says, "I'm not your mother! Stop calling me mom and use my name. I do have one you know!"

Does it bug anyone else that everyone has adopted this method of referring to parents? As far as I'm concerned it's disrespectful and creates distance between the professional and the parent. I do have a name and I like to be called Karen or Ms. Olson. It's kinder. It's also very lazy for you to refer to me as "mom"!

Ryan is 20 now, so I'm used to the it and it doesn't upset me or anything but I cringe when I hear teachers and other professionals using this shortcut to address parents. Sometimes the shortcut carries an attitude that DOES upset me.

Is it so very hard to respectfully use someone's name? I really bugs me when the person doing the "momming" is a parent of a child with disabilities who is in a parent-job advocating. Would you say, "What does Guardian think?" nope. You'd add an article, "What does Ryan's guardian think?" Maybe it's a matter of syntax and semantics with me. It's just plain bad English which probably explains why it annoys me so much when teachers do it.

Referring to me doesn't bother me as much as addressing me as Mom. "Hi, Mom" isn't cute when you're not my kid.

Please, as a gesture of kindness and respect, address me by my name. It's not a hard one. If you can't remember it then ask me. If your referring to me use standard English. Ryan's mom.

Well, that's enough of a rant for me! What do you think? Does it bug you when you are referred to as Mom?

Talk soon. May God bless you and yours,
Karen


Wednesday, May 19, 2010

Visual Learners

Good Morning!

What a great day it is too! The sun is shining, it's supposed to near 80 degrees! I hate to be obsessed and give you a weather report each morning, but we wait awhile for spring up here and the novelty never wears off! It's always brand new and kind of sparkly, ya know?

Ryan is hard of hearing, ergo he's more of a visual learner, but then, many of our children are. He learns by seeing, by touching and by processing with his eyes.

One of the ways I've found to assist that type of learning is by visiting all sorts of museums. This pic was taken at an old time town museum near Barron, WI. Ryan is standing at an old time post office. The odd thing is ... I remember being in post offices with the windowed mail boxes like this! Am I old, or what? Please say or what. ;-)

What other visual strategies do you have for your child with exceptional learning needs? Chime in!
Thanks and we'll see you tomorrow!
God bless,
Karen

Tuesday, May 18, 2010

Autism Conference Schedule for WI

Autism Society of WI's Fall Conference Schedule
More Details on the Autism Society of WI website

 September 23-24, 2010 - Paula Kluth

Co-Sponsored by DPI

Two Day Mega Training by Paula Kluth

Wintergreen Resort & Conference Center

Wisconsin Dells



October 15-16, 2010 AutCom Conference

National AutCom Conference

Co-Sponsored by ASW

Wyndham Milwaukee Airport Hotel & Convention Center



ASW 2011 Annual Conference

April 14-16

Kalahari Resort & Convention Center

Wisconsin Dells

(Early Bird materials will be on the website soon and in the next ASW

newsletter.)



Jane Pribek,Events Coordinator
Autism Society of Wisconsin
P.O. Box 165
Two Rivers, WI 54241
Phone 920-973-4080
Fax 888-836-4082
jpribek@asw4autism.org

Monday, May 17, 2010

Marvin Martian Mondays

Do you ever feel like Marvin the Martian visiting another planet? The life you plan for your child with special needs just doesn't always mesh with the ones others are planning?

If you're a person of faith you're not far from right. We are only here temporarily. We are not of this world, but of the next. We are here for such a short time, some of our special children less than that. If we keep that in mind it makes this life seem more precious. It's an experience for growth and love. The next life, our REAL life will be forever and it will ROCK!

To that end I've made a list of thoughts to consider:

  1. Live each day like there is no tomorrow ... or yesterday.

  2. Take risks, the rewards are great.

  3. Hug people, even if you have to teach yourself to do it.

  4. Say goodbye to people as though you'll never see them again.

  5. Ask God to bless your children.

  6.  Read funny books, watch funny movies, laugh ... alot!

  7. Do something for yourself every day.

  8. Forgive.

  9. Get enough sleep.

  10. Spend time really looking at (and touching) nature.

  11. Watch squirrels, they're hysterical.

  12. Buy or pick fresh flowers.

  13. Tell your family that you love them.

  14. Praise your children.

  15. Pray.
Have a good Monday,
Much love and joy,
Karen







    Sunday, May 16, 2010

    We gardened yesterday until we were half silly. I ached last night but it was soooo worth it. Ryan was happy, relaxed and satisfied. I was too.
    Here he is putting seeds in. What a guy!

    PUPPY CROQUET

    We have an afternoon of Puppy Croquet planned. We own a retriever (actually a mutt who is half golden retriever, half springer/cocker mix) so when we hit the ball she races us to it. If she gets there first she "retrieves" you back to start and you have to play from where it lays. Sometimes the Puppy Penalty is substantial. We've played out of weeds, flowers, just about anywhere you can think of. If the person who hits the ball gets  to it first they need to stand with their foot on the ball until it's his or her turn again. It's absolutely wild. The more people, the more chaos!

    Here's a photo of the culprit. She's a wild puppy and is scheduled to get her hair trimmed and get some shots on Monday. She's needed a hair cut forever but with my hip I just didn't get her there. Julie, her groomer, will probably fall over! The white spots you see on her coat is fur coming out! It looks like mange but it's simply a long haired mutt blowing coat. Whew! The vacuuming alone is daunting!

    Have a happy Sunday and we'll see you back here tomorrow.
    Much love and joy,
    Karen



    Saturday, May 15, 2010

    A Day at the Greenhouse!

    We had an awesome trip to Klinger's Farm Market yesterday. It's a place that centers both Ryan and I. We wandered through flowers, bushes, plants and trees. Ryan was buying plants, seeds and gardening tools for his raised planting beds and boy, did he buy!
    He's planting radishes, carrots, green beans, peas, cucumbers, tomatoes and lettuce. We also bought onion sets and flowers for the beds. He wanted a gentle shower type watering tool that set us back about $20 but he was so taken with it I couldn't say no. I know ... he's probably spoiled. Don't we all overindulge our kids when they take such an over the top liking to something?

    So, today we plant! We're even putting in the tomatoes already. We'll just have to cover them if we get cold weather. Ryan bought 3 cherry tomato plants and 3 large ones, Big Boy, Early Girl and Heritage. I hope they do well. It'll be fun to teach him how to wrap the stems with newspaper to prevent cutworm, although I don't know if cutworm is such a problem in raised beds. Worth doing though, I think.
    I cannot tell you all the ways that Gardening is good for a person! In fact, I believe I'll write my column on it this month. Look for more in my column Life on the Exceptional Side in Family Times Newsmagazine June and July issue.

    See you tomorrow!
    Much love and joy!
    Karen

    Friday, May 14, 2010

    My Baskets - My "Me" Time

    I wanted to show you some baskets I made in basket class. Who knew I'd be able to make a basket? I needed quite a bit of help and it's a long process but it was nice to challenge myself. The one to the left is called the Cranberry Basket because of the little cranberry beads that are woven into it.
    The other is a fall basket for magazines that I gave my mother as a Christmas gift last year.It's a lot bigger than it looks here. I took a break for a while because of health reasons but also because you can only have so many baskets, ya know? I'd like to make one more though so I'll have to watch for a really cool one.

    The hardest part for  me was winding the top to finish them. The rest is fairly routine if you carefully watch what you're doing.

    All this to say, don't forget about being a person. Have interests that take you out of the caregiver arena once in a while. It's important to grow and be creative as a person. So many times we get lost in our caregiver roles. We love our children, we wouldn't want it any other way. Always remember, however, that you are God's child and he wants to see you growing, changing, learning AND having fun! Think of how your heart sings when your children are truly enjoying themselves; when they're playing, laughing and delighted with something new. I think that God feels that too, when his children are doing something creative and fun.

    You know, I never really feel the need for a break from Ryan. He's an amazing young man. However, I DO feel the need to do Karen stuff once in a while. What about you?
    Take care and see you tomorrow.
    Much love and joy,
    Karen


    Thursday, May 13, 2010


    This, my friends, is the cute birthday cake Ryan picked out for me! Isn't it a hoot? It's a hamburger on a sesame seed bun with ketchup, mustard, lettuce and the burger. It appealed to his sense of whimsy and here it is! I loved it!
    My birthday went well. We had dinner at Texas Roadhouse. They really do make a good steak. Then gifts and cake at home. None of us are big cake eaters so the burger cake was the perfect size. You can tell how small it is sitting on my stove!
    I'm struggling to learn about my MP3 player now. I'd like to upload my playlist for you to listen to while you read. Not sure my blogging skills will realize that dream! I'll give it a few tries!
    I'm off to buy a chair today. My new hip can't take the recliner, the couch is too low ... like I told someone recently, I feel like Goldilocks ... without the blonde hair!
    Have a marvy day and make sure to check out yesterday's post on the transition gig in the Dells. Sorry, it's only for people in Wisconsin.
    Take care of you and remember, I'm praying for you and yours.
    God bless,
    Karen