Showing posts with label Adult Services. Show all posts
Showing posts with label Adult Services. Show all posts

Wednesday, August 18, 2010

A Typical Day

And I thought my house was small! This little gem was at a museum we visited. I'm sure the shingles are new but the house itself was old-shored-up. That's kind of how I felt after my hip surgery! Old-shored-up! My aunt Elaine is fond of saying that we have to get older, we just don't have to get old. I'm still pondering that.

How are you this fine, cloudy day? It looks like rain again and I'm hoping that the sun will peek out soon. Ryan has his massage today. He's due too. It makes such a HUGE difference with his muscles, his sleep and his general well being that we've scheduled a weekly massage with his therapist. Well worth it, I'd say. He's just so much more comfortable all week long. Check out Sans Souci massage and tell them I sent you.

Things are better today. Ryan's "person" got on board. I have nothing against young kids but they sometimes just don't understand the pragmatics of life yet. They try hard but there is a general lack of understanding on how the world works. The wisdom just isn't developed yet. They haven't lived enough. They haven't built houses, worked in full time jobs for years on end. They haven't dealt with major medical in any real sense of the word or even benefits packages. It's hard for them to grasp the realities of raising a person with disabilities. They think do-it-yourself and that's not a reality for people with disabilities. At any rate, things are sorted out and I'm on to the next project.

Ryan looked exhausted yesterday. That happens with his Cerebral Palsy. He just gets to a point where his resistance is down and he needs a day of complete rest. It happens less often than when he was in regular school. It's one of the benefits of homeschooling. I can catch that and call the day a rest day. It's prevented him from crashing with major illnesses in some cases.

We're getting ready for the school year. We don't start until mid September. Which is a laugh. The paperwork claims that you must teach over 700+ hours each year. Try 24/7. When you homeschool you grab those teachable moments. At any rates, we always start with Ryan's bird hobby in the fall with migration so we'd better get out the notebook. His two banded birds at the game reserve must not have returned to the same nesting spot last spring because he didn't get a call.

I'd better get out of my cyber life and get back to my actual one. Take care and see you tomorrow.
Much love and joy,
Karen

Sunday, July 11, 2010

A Down Day

I'm feeling overwhelmed today by Ryan's adult services. I don't mind all the paperwork, or even the hoops they make you jump through. I hate it when there are inaccuracies and mistakes on their part and Ryan pays the price. It breaks my heart. To say nothing of the amount of stress I feel when something doesn't get done the way it was supposed to, or the way they said it would.

I have a gift for organization, I'm a real organization junkie, and I'd like to flow chart their entire operation for them. They change rules constantly, which is OK, just NOT in the middle of a project. And so, today, Sunday, a day of rest, I get to deal with writing e-mails that will be in e-mail boxes on Monday morning. I WANT to play with Ryan. I hate taking time from him to mess around with this stuff when it should've been handled correctly in the first place. ERG!!

It's a down day for me people. I usually pretty positive but today is a day when the crud that we all deal with each and every day is getting to me. I pray that your day is full of joy, restoration and peace. I'm handing this particular situation to God. He can handle it better than I can.

Much love and joy,
Karen